Canada, 10th July 2014: Cystic Fibrosis is the name of a fatal genetic disease which is currently affecting over 35,000 Americans and over 70,000 Canadians across the world. This has mostly been viewed as a childhood disease as it usually known to be fatal during the mid or late teens. Although, the scenario has changed and the median age of the disease has grown up to the 40s there are still people suffering from this ailment. Due to medical advancements in drugs along with lung transplants the scenario has improved over the years.
But for those who are still suffering from it or the ones who are getting affected by this Ian Ross Pettigrew has moved ahead and plans to document these cases and collect information about the difficulties and issues faced by affected people. As per this initiative she would photograph the adults who are affected by Cystic Fibrosis. All this is done for raising awareness of this problem and help the people affected by the disease to live more and get treated.
For this purpose, she has come up with her own plan which is up for crowdfunding at kickstarter.com. As per her plans it would take around $7500 to travel all over Canada and North America and document at least 60 people. The money raised through this campaign would be utilized for the costs of the project which includes car rentals, hotels, GAS, gear rentals, etc. The entire documentation would be done in her book where she would be recording the stories of these adults for others to read. The trip is further divided into two separate trips whereby the 1st trip would include the western and northern region i.e. areas like Chicago, and Minneapolis. The next trip which she would start on October 9th would involve travelling via Connecticut and down the coast which would mean passing through the Baltimore, NYC, Chapel Hill, and Atlanta and till Florida.
The campaign has already had support from several known people such as the comedian Lewis Black who shouted and promoted the campaign. She also has the disease of CF and would be driving on her own to most of the locations. The entire money would be put to use for preparing the book and a compilation which could be beneficial to many people suffering from the disease.
About Just Breathe: Adults Living with Cystic Fibrosis:
https://www.kickstarter.com/projects/2131015647/just-breathe-adults-living-with-cystic-fibrosis
Just Breathe: Adults Living with Cystic Fibrosis is an initiative for preparing a book which documents the lives of people affected by the fatal disease of Cystic Fibrosis. The campaign has been initiated by Ian Ross Pettigrew and is up for funding on Kickstarter.com. the funding estimates required for documenting the cases and preparing the book is expected at $7500.
